Thursday, May 7, 2009

Counting Down...22 Days to Showtime!

A New Sponsor
How exciting, Steve Darnell is our newest event sponsor with a waaaay cool car, the Rat Rod. Even more fun, it will be at Bones on May 30 and we'll be raffling off a neighborhood excursion with Steve in his one-of-a-kind rat mobile...woo hoo! Here's the extra-unusual ride outside A Head of Our Time, with Steve (car designer/creator), Reba (fab stylist) and Carol (owner, A Head of Our Time).
Be sure to get to the event early for Rat Rod raffle tickets.


A Force of Nature
Earlier this week, we spent an evening with a diverse and exceptional group of people. They get together once a month, led by Julie Carter, and range anywhere from 10 yrs to over 50 yrs. The Chiari People of Billings support group is a force to be reckoned with--a force of nature that includes both mountains of sheer determination and a wide blue sea of compassion, with a heaven-load of bravery. Although Julie and Chiari People of Montana has come a long way over the past few years, it is very clear that the road ahead is still a long and arduous one.

Chiari Malformation is considered rare, yet it is not. If the condition was truly rare there would be perhaps 5 - 6 reported cases in all of Montana. Look at the partial map below and see the cluster of pins, it's shocking. We hope a gazillion people come to the Decades of Style event and help raise much needed funds, funds to effect critical change and education in the diagnosis and treatment of Chiari Malformation and related diseases.

No comments:

Post a Comment